Saturday, December 12, 2009

Thoughts At The Bedside


We've been at Abi's bed for the past couple hours. She wakes up very often, keeps her eyes open and looks at us. Then she's getting impatient and looks like she would like to say something; her eyes are unbelievable; they speak for her.

Due to her airways being swallen they had to postpone extubating her until this evening. She's on Decadrone, a steroid that will get the swelling healed. They will check again and if everything goes well she will be extubated tonight. If there are no stepbakcs we will try feeding her a bottle about 6-8 hours after taking her off of the ventilator. If she takes the bottle and tolerates the food they won't put the feeding tube in!!!! This would be great since this will be one of the things keeping us in the hospital once she's out of the CICU (Cardiac Intensive Care Unit).

The next steps will be to remove the central line that is in her neck, removing the access line that is going from her tummy to the inside of her left atrium and pulling out the last chest tube that is draining the fluids from the heart area out.

If this goes fine and there are no stepbacks she should go to the stepdown unit and being there is mostly for the parents to learn carding for a child after open heart surgery. Since there are 2 classes we will need to take we are planning on starting as soon as possible, so on Monday morning we will take the 'how to care for a child after heart surgery' class and in the afternoon the CPR class. We have taken this one after Abi was born but we will take it again.

So we may be done with the classes before she settles down in the Step Down unit.

I just talked to the nurse and, she didn't want me to get too excited so she unwillingly said yes, but she did say yes when I said there was a very realistic chance we would be home next weekend!!! This would be best best case scenario, but we saw a couple of those this past week, didn't we! ;-)


  1. So glad to hear that you are able to stay at her bedside that long! And I know it's so wonderful to look into her eyes...the next wonderful thing will be to hold her again! Praying that the swelling will go and it will go well for the tube removal this evening AND THAT SHE WILL enjoy her bottle. SMUCH NEGO ABI!(excuse the American spelling!) Sounding really good! And praying that you can be home next weekend!!!!! Abi - think food :)
    love you guys!!! Sue

  2. Wow. Sounds like Abi is almost as eager as her mom and dad, and the rest of us, to get out of the CICU unit. Way to go Abi. WM

  3. Sounds so promising. Hoping by now she's downed a bottle or two, but if not, rest assured that having a feeding tube doesn't keep you there inevitably. Conway needed one and ended up being 100% tube fed for 8 long months afterward, but that did NOT keep him in the hospital! There are feeding pumps and tubing available through home health care companies. But all will be well. Dear Abi sounds like she's going for a record of NO Setbacks! Yay Abi!