Weird

Weird

Weird. It's been a pretty good day with all the great news; tubes coming out, IVs coming out, Abi being alert a lot during the day, yet it's been a rough day.

We spent with her about 7 hours this afternoon and she slept about 45 minutes only. She was exhausted; bottle feedings didn't really work. We got to hold her in our arms and it was great. She looked so tired though; her eyes, still big but rather gray than blue disappeared somewhere deep inside; we had to leave for the nurses shift change; it was the hardest moment today; she was awake, looking at us with the eyes saying she didn't really know why we were leaving her. It was easier when she was drugged up and sleeping.

Now, she finally fell asleep. In her big girl bed; listening to the same music she listens to every night at home.

I pray she has a good night.




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Feeding Tube In

Abi is exhausted and she did not sleep more than 45 minutes in about 8 hours hence as at home she did not express any interest in eating and..... we had to put the feeding tube in ;-(








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- Posted using BlogPress from my iPhone

Feeding Tube Or No Feeding Tube

1.24pm

The heart access line going directly to Abi's left ventricle was pulled out this morning. Since there was no bleeding they also pulled out the last chest tube. This was a great start of the day. Now she's off the air flow as well maintaining her blood saturation very well.

The only that is not going great right now is feeding. She is not too interested in eating and when she does she ends up spitting out most of what she ate. We've tried twice so far and the plan is to try one more time and then to put the feeding tube in. Honestly I hate this plan so I want her to skip the feeding tube.

We'll see what's gonna happen next.

And this is Abi eating the second time.










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