Monday, August 10, 2015

Another cardio visit another great report

This morning we had another cardiologist checkup. Both of our girls did great at the doctors office. Abigail was not stressed she had a really good time and all the results of EKG and echo came out great.
We had a really good chat with Dr Ohmstede about Abigail's current state and her future. I am really hopeful and keep praying that things will continue as they are and if so, she may not need anything and have no issues for a very very long time if ever. We are really blessed by how she is doing, how her heart is growing and there are no negative changes regarding the last defect, namely Ebsteinoid tricuspid valve and mild regurgitation.
Here are some pics from today's visit

Saturday, August 8, 2015

Last year review

Last 12 months were really busy and a lot good has happened.
After celebrating Abi's 5th birthday with multiple parties both at home and at her grandparents' in Poland, Abi started Kindergarten.
I am amazed at how much she has learned within the first couple of months and continued to practice for the remaining on the school year.
She can count, read, write, does additions to 200. Just crazy! And all of this before she turned 6.
Her cardiologist appointment went very well and no changes have been recorded so she keeps on going strong with the meds and no limitations.
In the winter we signed her up for swimming lessons and she really enjoyed it making a great progress. In the summer she did a great self awareness and self defense training for children called radKids with Carolina Self Defense.
In the very early spring her grandparents came to visit and celebrate her 6th birthday with us early.
In couple of weeks Abi's going to 1st grade. Her pediatric well check went great a her cardio appointment is in 2 days.
Our Facebook CCTGA (LTGA) Group is growing, meaning there are more people and families getting so needed support and information.
If you're here, on this blog, because you just found out that your baby has LTGA (ccTGA) and you're searching for information, want to learn about this defect and need support please find us on Facebook.