Monday, June 28, 2010

How much can she eat

Last week Abi started taking longer naps, especially the first one later in the morning.

Today again she took a 2 hours and 50 minutes nap and then had lunch.

And now that's what I was not expecting!

She ate almost full jar of mixed veggies with turkey (one of her favorites) and 1/4 of a container with apples and carrots and 1/4 of a jar with spaghetti in meat sauce and 1/4 of a container of prunes. And snacks after this. WOW!!!! Hopefully the next diaper change will fall on mommy ;-)


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Abi feeding mommy

Sunday afternoon Abi feeding mommy for the first time. And yes it was Abi's idea and initiative.

YouTube Video


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Friday, June 25, 2010

June 24th - 1 month away from being 1!!

Just a few words about Abi:

~ she turned 11 motnhs yesterday;
~ has been crawling for a month now;
~ uses sign language to express she wants milk;
~ understands 3 languages;
~ dances and claps her hands when she hears music;
~ sings Elmo song - the 'lalala, lalala' part of course :);
~ points out things she wants to see or touch;
~ gives kisses;
~ understands and mostly obeys when you say "no touch".

She's just one smart cookie!

Tuesday, June 22, 2010

About Abi's heart - (from chdbabies.blogspot.com)

Congenitally Corrected Transposition of the Great Arteries

Congenitally corrected transposition of the great arteries is a complex, unusual abnormality in which the pumping chambers (ventricles) and attached valves (mitral and tricuspid valves) are switched. This condition exists at birth (congenital heart disease), but could remain unrecognized until adulthood.

In congenitally corrected transposition of the great arteries, the aorta and pulmonary artery connect from the wrong lower heart chambers (ventricles), so the blood flows to the body from the wrong ventricles. The blood flows in the correct direction. Oxygen-poor blood from the body goes into the lungs to pick up oxygen and oxygen-rich blood from the lungs goes out to nourish the body.


United States

Data from the Baltimore-Washington Infant Study supported the fact that congenitally corrected transposition is a rare disorder. As many as 40 infants per 100,000 live births are affected by congenitally corrected transposition of the great vessels; this is fewer than 1% of all congenital heart defects.


This disorder is reported in 0.5% of patients with congenital heart disease, and the literature reports fewer than 1000 cases. Most pediatric cardiologists have seen multiple cases of congenitally corrected transposition of the great vessels; however, the true prevalence of the malformation is not known.


Most babies born with congenitally corrected transposition of the great arteries also have other congenital heart defects which need treatment, including:
  • A hole in the wall between the two lower heart chambers (ventricular septal defect)
  • Narrowed or blocked pulmonary valve (pulmonary stenosis)
  • Blood leaking backwards in the tricuspid valve (tricuspid valve regurgitation)
  • Abnormally slow heart rhythm (complete heart block)
Children who have severe congenitally corrected transposition of the great arteries may need treatment within a week of birth.

Adults who have a milder condition may live for years without symptoms.

Symptoms usually reflect associated cardiac anomalies. The uncommon patient with isolated congenitally corrected transposition of the great vessels should be asymptomatic early in life. The diagnosis may be established via a chest radiograph or electrocardiogram performed for another reason; otherwise, this condition is usually diagnosed later in childhood or in early adult life when patients present with complete heart block or heart failure due to right ventricular decompensation or systemic tricuspid valve regurgitation.
    Treatment options for children and adults include:
    • Observation and monitoring - If you aren't experiencing symptoms or heart rhythm disturbances, you should have regular observation and monitoring by an adult congenital cardiologist. A typical evaluation includes a thorough physical exam and tests.
    • Medications - Your doctor may prescribe medications to improve your heart's ability to pump and reduce the effects of a leaky heart valve.
    • Surgery - You may need surgery to treat your congenitally corrected transposition of the great arteries. If you have additional congenital heart diseases, doctors may perform surgery when you are young. Depending on your situation, surgery may include:
    1. Heart valve replacement. If your tricuspid valve allows blood to leak backward, your surgeon may replace the valve.
    2. Pacemaker implantation. Your doctor may implant a pacemaker to treat an abnormally slow heart rhythm (complete heart block).
    3. Ventricular septal defect repair. Your surgeon may close a hole in the wall between the two lower heart chambers (ventricular septal defect).
    4. Pulmonary valve surgery. Your surgeon may repair or replace the pulmonary valve or remove the blockage at or below the pulmonary valve (pulmonary stenosis).
    5. Double switch operation. In this procedure, your surgeon repairs a congenital heart defect, such as a ventricular septal defect, and reroutes the great arteries so the ventricles pump blood in the correct direction.
    6. Heart transplant. In people who have serious conditions, a heart transplant may be needed.
      Pregnancy and family planning
      If you have any congenital heart disease such as congenitally corrected transposition of the great arteries, you should discuss your plans for pregnancy with your doctor before becoming pregnant. Successful pregnancy is very possible.


      Saturday, June 19, 2010

      Next Step

      I have been a YMCA member for a while now, but due to Abi's surgeries I had absolutely no time to go and workout in the past couple months.

      Now when Abi's doing so good and she's growing and enjoying children so much we have decided to put her in YMCA child care couple times a week what will give me the opportunity to workout in the mornigs.

      Yesterday was the first try. She did great. All 30 minutes ;-)

      Today we tried again and she did even better, so I'm going to drop her off on Monday morning and this time actually workout! It is a great opportunity for her to learn new things, have some time with other children and be away from us for a little while.


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      Thursday, June 17, 2010

      Baby Likes Afro

      YouTube Video


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      The Beginnings

      Yes, the beginning was 10 Years ago ;-)   [well, 13 years ago, but the official one 10 ;-) ]

      June 17, 2000


      Monday, June 14, 2010

      All The New Things

      Just recently Abi saw her friend drinking from a cup with a straw and immediately wanted to try the same. Since then she drinks from cups with straws but not only; regular cups too. Water with ice is something she definitely likes ;-)

      This past Saturday she started...... walking with help! Seriously! Now standing up and walking is mostly what she wants to do.

      And on Saturday was her first time in the lake! She DID like it. At first she wasn't too excited, but it didn't take her long to start enjoying it and spent about 30 minutes in water with us ;-)


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      Tuesday, June 8, 2010

      Let's Play With a Ball Mom

      No words necessary ;-)

      YouTube Video

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      Friday, June 4, 2010

      Matters Of The Heart Vol.1

      "Matters of the Hearis a beautiful compilation of stories that tell about the daily lives of the CHD world. Inspiring, supportive and understanding; this work is not just a must read but also provides comfort to those families who struggle daily to keep their lives together. To those families: You are not alone, we are all here, supporting and standing with you. Hand in Hand and Heart to Heart we are walking together through each other's journey."

      You can buy the book here: Buy Matters Of The Heart 

      I Can Get Up On My Own

      Past couple weeks Abi has been trying to pull herself up from sitting to standing, but it seemd almost impossible yet. I put her for her morning nap today and about an hour later I saw on the video monitor she woke up. A moment later all I saw were her legs. I went upstairs to her bedroom just to see her..... standing up and smiling all proud of herself.

      I let her play in her bed for a moment to write on Facebook about it and then she did it couple more times when I was there watching her. Each time easier and faster with less and less effort.

      Time to lower her bed all the way down ;-)


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