Are you ready for this?!

11.31am

I'm sitting at Abi's bed right now. Ok are you all ready for this?! They took her off both medicine making her pee (Diuril and Lasix)!!! They took her off the sedatives (Versed)!!! They TOOK OUT 2 CHEST TUBES!!!! The bleeding in the heart area is that minimal. And ..... They are planning on waking her up slowly to ...... Try to take her off the ventilator TODAY if she's doing as she's doing. I was told she's a little star here doing better than expected and than normaly kids do!

Everything else is in the norm.
Below is Jackie, the awesome nurse who prayed for her during the surgery and who keeps on checking on Abi.







More awesome news soon.

Art


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Another Morning

6.25am

We're sitting next to her right now. Seems like Abi's still sleeping. She had a good night with no episodes. They took her off Diuril since she's urinating enough on her own and with Lasix. One drug at a time. We'll take that!!!

All her pressures and temperatures are fine. The atrial pressures (pressure inside left and right atriums) are excelent!

They lowered her breathing rate and oxygen levels again which is good! Bleeding is still minimal!

It was a good night!

Art

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Midnight

Midnight

The day is over. It was a good day. They closed Abi's chest, her heart is beating strong, saturation close to 100, kidneys are working great pushed by Lasix and Diuril. She is getting lots of meds, fluids and nutrition; all together about 12ml an hour. Started her nutrition and fats through IVs this afternoon. Bleeding in abdomen and heart area is minimal ;-).

The oxygen saturation in the air used by the ventilator was reduced from 60% to 40% (natural is 21%) (this is a good thing). Her heart rate, blood pressure and temperatures both core and skin surface are perfect. They need to use quite a lot of Versed (sedative medicine) via constant drip because she's 'ready to go' - moving and kicking a lot.

We spent couple hours with her this evening and she was just great!!! One of the IV lines was leaking some so they had to stop the bleeding, fortunately they didn't have to replace the line itself.

Praying for a good night for her and hoping for more good news tomorrow we're checking out tonight.

Art


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Chest Closed

3.17pm

We just saw Abi again. Her chest is closed but the suction tubes are still there and will remain in as long as there is some bleeding. The bleeding is minimal though.

She did great and is sleeping right now.


Art


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Righ At This Moment

1.30pm

Right at this moment they brought the operating team to th Cardiac Intensive Care Unit and..... They are closing her chest!!! ;-)

They should be done in about an hour or so!!!

How awesome is that!!!!!!

Art


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We are with her now

Lip balm







Covered with her fav blankie







Sleeping comfortably...

She's doing very well.. Still wants to move a lot, whitch is normal for her age; she's just an active little girl. Her kidneys are working efficiently now. J.

The Next Morning

9.30am

We went to see Abi before the shift change and rounds started, after 6am. We happened to stay during a doc visit and talked to her surgeon. He said that the bleeding is minimal so he may be back to close her up earlier than planned, maybe this afternoon. We are not able to visit our baby girl between 6.30am and 10.00am and between 6.30pm and about 8.30pm.

Abi had a pretty good night. She is very active and moving a lot. The nurses ended up giving her verset (sedation meds) every hour. They ordered a continuous drip as she's not responding to the other sedation medicine. She's just impatient to get out of there!
One of Abi's dedicated nurses prepared a cute name tag, and since she is POLISH too(!!) she wrote it in Polish.



We happen to meet Polish doctors and nurses here pretty often. It's a blessing since they are excited and even though all of them are great these feel special connection and are very compassionate and sweet.

Now we are waiting for Abi's kidneys to start working better. It is expected they would get 'lazy' after general anastesia so she is getting Lasix to help the body lose fluids and stimulate kidneys.

She's still pretty swallen but again, it's expected. She should get better within the next day or two.




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