6.25am
We're sitting next to her right now. Seems like Abi's still sleeping. She had a good night with no episodes. They took her off Diuril since she's urinating enough on her own and with Lasix. One drug at a time. We'll take that!!!
All her pressures and temperatures are fine. The atrial pressures (pressure inside left and right atriums) are excelent!
They lowered her breathing rate and oxygen levels again which is good! Bleeding is still minimal!
It was a good night!
Art
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Abigail
Friday, December 11, 2009
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Abi's Heart
CTGA, Ebstein's, VSD, PS
Double Switch Surgery - Part 1
Double Switch Surgery - Part 2
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are... -
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ... -
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ... -
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
Abi's Doctors
Dr. Craig Greene Cardiologist, Charlotte, NC
Dr. Paul Kirshbom- Cardiothoracic Surgeon, Atlanta, GA
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
Thanks be to God!
ReplyDeletePraise GOD!! Thank you Jesus!!
ReplyDeleteLove you guys praying for you all ;-)
Abi keeps making my days!!! such a beautiful thing. God is gracious. I love you all SO MUCH!!! -bambina
ReplyDeleteThanks God - it seems like Abi is a very strong girl and I am sure that your love, faith and belive keeps her with us. I am very happy for you and your wife when the news are good. God blessed! Magda Szulc/Cirillo
ReplyDeleteContinued praises! Wonderful news! Thank you for the updates. We continue to pray. ~JRM~
ReplyDeleteThank you Lord for all this good news! We pray for angels to continually be around her, ministrering to her and protecting her. We pray for Your wisdom for the doctors, nurses, aides and Artie & Asia - that they always hear from you for the daily decisions....Thank you Lord! We pray for excellent recovery in every way and we pray that Abi's story will give hope and inspire faith for others that Jesus is alive!
ReplyDeleteWONDERFUL! I am very pleased that you all are having excellent results. God has really placed His hands on little Abi and the doctors working with her. I am so very excited for you all. God bless. Allen Dunn. (Friend of Jimmy Martin)
ReplyDeleteExcellent news...God is SOOOOO good!
ReplyDelete-Susie
That is so wonderful to hear!! Thank you so much for updating this website with new news! Thank you Lord for holding, protecting, and healing Abi through all of this. Thank you Lord for holding Art and Asia through all of this! I pray that she continues to amaze you with her progress!
ReplyDelete~Chastity Harris~
That is sooooo AWESOME! Praying for you all!
ReplyDeleteYay! So good to hear. Prayers continuiung for you all. Sounds like she's on the right track for sure.
ReplyDeleteErin