Abi is exhausted and she did not sleep more than 45 minutes in about 8 hours hence as at home she did not express any interest in eating and..... we had to put the feeding tube in ;-(
Abi looks so good. It is great to see her without all the tubes. I'm sorry she had to go on the feeding tube, but we are very thankful for all the good things that have happened so far. We love you guys and continue to hold you and Abi before the throne of grace.
Maybe her esophagus and stomach shrunk a bit during the time she was operated on and the recovery. Now, with the feeding tube in place it will spur some growth there and the tube can come out soon.
I know you are disappointed ab the feeding tube but this way Abi can get a good night sleep and be ready to eat like a champ in the Morning. We continue to pray for a speedy recovery. Love you guys.
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Abi's Heart
CTGA, Ebstein's, VSD, PS
Double Switch Surgery - Part 1
Double Switch Surgery - Part 2
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Abi looks so good. It is great to see her without all the tubes. I'm sorry she had to go on the feeding tube, but we are very thankful for all the good things that have happened so far. We love you guys and continue to hold you and Abi before the throne of grace.
ReplyDeleteLove, Byron and Becky
:( Bummer. Hopefully she won't have to have it long. At least you know that she'll be getting the nutrition she needs until she's ready to eat.
ReplyDeleteMaybe her esophagus and stomach shrunk a bit during the time she was operated on and the recovery. Now, with the feeding tube in place it will spur some growth there and the tube can come out soon.
ReplyDeleteI know you are disappointed ab the feeding tube but this way Abi can get a good night sleep and be ready to eat like a champ in the Morning. We continue to pray for a speedy recovery. Love you guys.
ReplyDelete