Yesterday, for the very first time, Abi took 2 crawling steps and Asia got to see it!!!!
Today when the 3 of us were together Abi did it again!
She's so close to get this figured out and crawl all around ;-)
And this morning she spent about 20 minutes trying to pull herself up to stand up possition in our living room. She was not giving up!!! Even though she was very tired and ready for her nap.
This determination was absolutely amazing!!! If she's going to keep it all her life and combain it with God's love, grace, mercy and wisdom she will be unstoppable !!!
I am so proud of her !!!!!
Art
- Posted using BlogPress from my iPhone
Abigail
Tuesday, May 25, 2010
Monday, May 24, 2010
10 Months
Thank you to all of you who are visiting Abi's blog and who keep on praying for her. We've been quiet for a little while, but it's been a very busy time for us and we need to slow down a bit.
Abi continues doing great. She's growing, learning, changing daily. She's just a little "hip move" away from crawling. She has a really strong voice and started "talking" a lot.
Having her with us is so amazing. Watching her grow and learn, look at everything with this passion in her eyes is one of the most wonderful experiences in life.
Here are some pictures






- Posted using BlogPress from my iPhone
Abi continues doing great. She's growing, learning, changing daily. She's just a little "hip move" away from crawling. She has a really strong voice and started "talking" a lot.
Having her with us is so amazing. Watching her grow and learn, look at everything with this passion in her eyes is one of the most wonderful experiences in life.
Here are some pictures






- Posted using BlogPress from my iPhone
Friday, May 7, 2010
Thursday, May 6, 2010
Abi's off Meds
Last week after Abi's cardiac appointment we took her off her only blood pressure meds she was on and she was on them only as a precaution after second heart surgery.
Today I took Abi to her pediatrician to have her blood pressure checked, 9 days since we stopped the meds and.... It's perfect.
100/60 on her leg when she was moving and 96/64 on her arm. It's really good and she's not coming back on meds. Hopefuly never ;-)
And this is her playing in the waiting room

Art
- Posted using BlogPress from my iPhone
Today I took Abi to her pediatrician to have her blood pressure checked, 9 days since we stopped the meds and.... It's perfect.
100/60 on her leg when she was moving and 96/64 on her arm. It's really good and she's not coming back on meds. Hopefuly never ;-)
And this is her playing in the waiting room

Art
- Posted using BlogPress from my iPhone
Wednesday, May 5, 2010
Abi These Days
Abi is unbelievable; she's growing, maturing, changing all the time and is sweet as only could be. And yes I know every parent says that about their children, but also there are children who's parents admit they are whinny, fussy and difficult.
As for Abi she's none of the above. You don't see her fuss nor hear her whine. She's a very happy and easygoing baby for what we are very thankfull.
Just a couple pictures taken in the morning and afternoon.
Eating breakfast

Shopping for hats

Kneeling while playing ( new thing )

Walking with daddy

Art
- Posted using BlogPress from my iPhone
As for Abi she's none of the above. You don't see her fuss nor hear her whine. She's a very happy and easygoing baby for what we are very thankfull.
Just a couple pictures taken in the morning and afternoon.
Eating breakfast

Shopping for hats

Kneeling while playing ( new thing )

Walking with daddy

Art
- Posted using BlogPress from my iPhone
Tuesday, April 27, 2010
9 Month Old Check Up Yesterday And Cardiologist Appointment Today
Yesterday's 9 month old check up went great! Abi did so good I couldn't be more proud of her.
She gained wight very well and is now caught up, weighing 18.9lb puts her in 50% weight, and 28in in 70% length.
Her overall development is just right where 9 month old should be, so it means she had no set backs from the surgeries and, what's the most important, her brain did not suffer any harm after being twice on heart bypass machine. THis is wonderful!
Today's cardiologist visit was even better. Dr. Greene did not stop using words like "fantastic', "wonderful", "phenomenal", "couldn't be better". Her saturation was......100 !!! Her blood pressure 99/61 exactly where needed; echo showed no changes other than tricuspid regurgitation only improved.
From today we stop the last meds and we will get her blood pressure checked in about 10 days; if everything is great then, there will be no need to go back to the meds.
Next appointment in 3 months and then in 6 months and than annualy.
We even talked about plans as far as mid school and high school!!!! How cool is that?! ?! ?! Last year around this time we were encouraged to seriously consider pregnancy termination! It just makes us want to go back to see this particular doctor and visit him with Abi ! ! ! ;-)
Art
She gained wight very well and is now caught up, weighing 18.9lb puts her in 50% weight, and 28in in 70% length.
Her overall development is just right where 9 month old should be, so it means she had no set backs from the surgeries and, what's the most important, her brain did not suffer any harm after being twice on heart bypass machine. THis is wonderful!
Today's cardiologist visit was even better. Dr. Greene did not stop using words like "fantastic', "wonderful", "phenomenal", "couldn't be better". Her saturation was......100 !!! Her blood pressure 99/61 exactly where needed; echo showed no changes other than tricuspid regurgitation only improved.
From today we stop the last meds and we will get her blood pressure checked in about 10 days; if everything is great then, there will be no need to go back to the meds.
Next appointment in 3 months and then in 6 months and than annualy. We even talked about plans as far as mid school and high school!!!! How cool is that?! ?! ?! Last year around this time we were encouraged to seriously consider pregnancy termination! It just makes us want to go back to see this particular doctor and visit him with Abi ! ! ! ;-)
Art
Monday, April 26, 2010
9 month check-up
Today is Abi's 9 month check up and tomorrow the 3rd cardio visit after her second OHS - on march 2nd. She looks like she's gaining weight, so the question now is not "is she gaining?" but "how much?".
She is a pure joy and example of health. She's never been sick except a few minor colds within the last 9 months. It's good and bad, because the sickness is unavoidable at one point to build up her immune system. However, I am happy it didn't happen when her heart needed deserved rest after both surgeries.
We love her to pieces!
J.
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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11.31am I'm sitting at Abi's bed right now. Ok are you all ready for this?! They took her off both medicine making her pee (Diuril ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect







