Yesterday's 9 month old check up went great! Abi did so good I couldn't be more proud of her.
She gained wight very well and is now caught up, weighing 18.9lb puts her in 50% weight, and 28in in 70% length.
Her overall development is just right where 9 month old should be, so it means she had no set backs from the surgeries and, what's the most important, her brain did not suffer any harm after being twice on heart bypass machine. THis is wonderful!
Today's cardiologist visit was even better. Dr. Greene did not stop using words like "fantastic', "wonderful", "phenomenal", "couldn't be better". Her saturation was......100 !!! Her blood pressure 99/61 exactly where needed; echo showed no changes other than tricuspid regurgitation only improved.
From today we stop the last meds and we will get her blood pressure checked in about 10 days; if everything is great then, there will be no need to go back to the meds.
Next appointment in 3 months and then in 6 months and than annualy.
We even talked about plans as far as mid school and high school!!!! How cool is that?! ?! ?! Last year around this time we were encouraged to seriously consider pregnancy termination! It just makes us want to go back to see this particular doctor and visit him with Abi ! ! ! ;-)
Art
Abigail
Tuesday, April 27, 2010
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
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Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
I wish you would go see that doctor!
ReplyDelete~Stacy
Hi dear. Abi is beautiful...I wish you could show her smile to this "doctor"
ReplyDeleteMy daughter has also had DS and she has Ebsteins. She is a wonderful 6 year old girl and we had the cone procedure to fix her valve.
She had PA banding first, then DS and valve reconstruction in her second surgery. Write me if you want. drbsensato@hotmail.com
Person recommending pregnancy temination shold not be called "doctor" :/
ReplyDeleteHow wonderful!!! The progress continues to be fantastic news! We continue to pray prayers of thanks! ~JRM~
ReplyDelete