Tuesday, December 8, 2009

Change of plans

So here we are, waiting for Abi to come out from the cath procedure. She was taken there

at 9:30am and we just got an update on her. Fortunately, she's sleeping all the time and she just got some more sudation, so she will not be scared. The reason for cancelling the surgery at the last minute and going with the cath was that her saturation is in the 70-80% instead of 90s and the echo showed no overcirculation in the lungs. They are trying to find out what to do next. There are a few options: 1. Replacing the severely leaking valve only or with closing VSD (right now its 7mm). 2. Doing a double switch now. 3. No surgery for now. The answer to that we'll know maybe today. They mentioned a heart transplant but this option would buy her no more than 20 years (statistically) of life with 2 heart transplants and then it would be "the end of the road" as the doc said this morning.
Apart from that, Abi is doing exceptionally well, she is so easygoing and patient. Sometimes I think she understands more than we think.
She's handling this much better that mom and dad...



  1. I am so sorry that you guys didn't get better news. I hope that the doctors will come up with a solution that will be good long term.

  2. You're in my thoughts and prayers ... I'm hoping all goes well. Carol, Poznan.

  3. Jimmy Martin showed me this blog. He has asked for some of his internet friends to pray for you all.

    I am saddened to hear of this. Stay strong and keep your faith in the Lord. I know you all must be a nervous wreck at this point.

    I have prayed that God will place his hands on Abigail and your faimly. Also, that the Lord will give the surgeons the calmest hands to perform the surgery and that he will comfort them so they are totaly focused on this.

    Never loose faith and stay strong in the Lord. I know sometimes life gets tough. You can testify to that now. But keep your faith. The Lord will bless you.

    Your brother in Christ. Allen (Friend of Jimmy Martin)

  4. OMGosh, Jo! I went to Baby Center expecting to see an update on the PA banding and find a post about the DS....today?!?! You must be a wreck.
    I am praying so hard for Abi and for y'all.

    Keep us updated when you can~
    Lisa in TN
    Eli's mom (L-TGA)