Abigail
Tuesday, April 6, 2010
Monday, March 29, 2010
Second Post Op Cardiologist Appointment

This morning we went to Abi's second post op cardiologist appointment.
She did great and Dr. Greene was very excited with Abi's progress and with how great she's doing. She gained 2lb and grew 1.5 inches since her last appointment. Her respiratory rate is great, heart sounds very well, her saturation was in high 90s, which is perfect; echo showed that there is no fluid around her heart, the repair looks and works very well. Since today we won't be giving Abi lasix and her blood pressure meds will end with the next visit, next month.
Next month, when we confirm Abi continues doing so well, we will start stretching follow-up visits. 3 months, 6 months and once a year ;-)
It was a great way to start the day and the week!
Now praying for all the other heart babies. Ava- going to get a closer look at her heart done this week, and Kelsey going for her heart surgery at the beginning of April!!!
Art
Wednesday, March 24, 2010
Monday, March 22, 2010
Respiratory Rate
10.30pm

Before the first surgery Abi's respiratory rate at rest was 60-70 and just right before the surgery was getting as high as 80-90. After the surgery it dropped down to mid 40s and when it got in to 50s we chec
ked with her cardiologist and this is when they found out the obstruction.
We just counted her breaths and ...... 36/minute while she's sleeping. How awesome is that!!! ;-)
Art
- Posted using BlogPress from my iPhone

Before the first surgery Abi's respiratory rate at rest was 60-70 and just right before the surgery was getting as high as 80-90. After the surgery it dropped down to mid 40s and when it got in to 50s we chec
ked with her cardiologist and this is when they found out the obstruction.
We just counted her breaths and ...... 36/minute while she's sleeping. How awesome is that!!! ;-)
Art
- Posted using BlogPress from my iPhone
Thursday, March 18, 2010
Simple joys..
Abi is such a happy little girl. She had a lot of fun with daddy today, who apparently was in the shopping mood and got Abi a hat, pull out the cart cover - not mentioning color coordination of her outfit. Well done. :)We practically do not need any toys. She enjoys empty paper cups, plastic bottles and coasters, even her empty tray seems interesting to her...
She is such a joy! I can't wait sometimes to be woken up by her to feed her in the middle of the night (I'm serious), so I could cuddle her and kiss her sweet and sleepy little face. I am addicted to giving her kisses!!
J.
Tuesday, March 16, 2010
2 weeks after surgery & doing great

Just a short update.
Abi continues doing great. She is so active now we have to keep our eyes on her all the time. She grabs everything that is close enough, even when getting it means leaning forward so far while sitting that her chest touches the ground between her legs and she needs to stretch her arms as much as she only can.
She is so adorable, "talking" all the time, giggling and never letting smile off her face.
Her feeding habbits are getting better and evening routines are improving too. More predictable and much easier.
Her grandpa is doing very well too and can't wait to come and meet her ;-)
Thank you all fo your thoughts and prayers!

- Posted using BlogPress from my iPhone
Friday, March 12, 2010
The first Post-Op behind us
We have our first post-op visit (first after the second surgery) behind us. It went very well, except the x-Ray itself. Abi just hates x-Ray with passion, though the results were awesome. Both the x-Ray and echo look very well and seems like the repair is working great. The cardiologist was very pleased with how things look and how Abi is doing and recommended the following medical treatment for now: Love Her, Feed Her and Let Her Grow ;-)
We got the Lasix down to half of what she was getting so far and we are going for another visit in 2 weeks. We hope to lower Lasix even more then and to maybe totally stop giving her Prinivil (the blood pressure medicine).
Thank you to all of you praying for her and us and for all your comments!!!!
Greets
We got the Lasix down to half of what she was getting so far and we are going for another visit in 2 weeks. We hope to lower Lasix even more then and to maybe totally stop giving her Prinivil (the blood pressure medicine).
Thank you to all of you praying for her and us and for all your comments!!!!
Greets
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect



