No surgery in the morning

Late update

We got to the hospital at 9am. We met many people; cardiologists, phisicians, Cardiothoracic surgeons, anasthesiologists and some others. After answering many many questions, having Abi go through heart echo, chest x-Ray and blood work, we were out of the hospital after 7 hours. Abi did great though they wanted to get good pictures with the echo and they sedated her. This caused her blood saturation drop really bad and they had to give her some oxygen. After all of this when we got home they called us saying they didn't like some of the tests results and they don't want to do the surgery in the morning. They want to do a cath, a line driven up one of the veins to her heart to measure everything from the inside. Once they have more info they will discuss what they are doing next.

We don't know what they will do nor what the next step will be. We
have to be in the hospital at 7am and don't know what next. We will keep you updated.

Artie

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We're here...

Finally, granda at home safe and sound and we after 5h trip filled with 4 stops and some adventures-emergency stop to buy a paci we forgot to take for Abi,we reached Atlanta at 10pm. Abi did great during the trip and at night, though found herself most comfortable in my arms, for the first time refusing to sleep in her bed.
Now,we're heading to the hospital for the preop and to meet all the docs , and find out what the plan 4 2morrow is.
We'll post more as we know more....
Thank you for caring 4 Abi ...
Jo.

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Dedication

Abi's Dedication was yesterday...

I am so proud of Abi and thankful for my awesome family. They mean a world to me. Pastor and the Church prayed for a total healing of her heart.

The surgery is next Tuesday...

I had a dream that night that we all went there and the doctors listened to her heart and with astonishment claimed her heart sounds normal. I don't have a clear image of the end of this dream... but I'm still hopeful and still praying Abi will be a great testimony of a complete healing that will leave people with amazement of what God can do...

 

4-monthversary..

It seems like a moment but exactly 4 months ago (17 weeks) I saw my precious daughter's face for the first time. I will never forget this moment...

I can't believe she can sit up, talk, play and do all the cutest things.
I also can't believe that in exactly 2 weeks she will be in a recovery room after her very first heart surgery... brrr...

Abi is by far my favourite person in the whole wide World....

Happy 4-monthversary my Dear Abi!!

PA Band

We found out today about the upcoming surgery in Atlanta..

It's scheduled on December 8th. We're leaving on Sunday, December 6th, after we see off my mom at the airport. Pre op is on Monday.

On Tuesday, they will be putting a band over the Pulmonary Artery to restrict the blood flow going to the lungs.

http://www.med.nus.edu.sg/paed/resources/cardiac_thumbnail/surgery/pab.htm

It's been a surreal day and unfortunately there are more to come...

Sweet 16...

My sweet little angel is 16 weeks today...

She's such a delightful addition to our family. I wish I had more time to spend with her during the day.

This is my first post and I have not written down her story yet - I don't even know where to start from...

As of today, Abi's had about 20 echos done of her heart. The first one was done when she was a 18-week old featus and the last echo was done on November 10th - last week.


We are awaiting a second opinion from the Atlanta's team and a decision about her first surgery (putting a Band over her Pulmonary Artery). Our local cardiologist suggested that temporary solution as a first step of helping Abi to breathe and gain weight better.


We shall wait and see....